Scaling Up The Knowledge To Empower The Bleeding Disorders Community

Every year on April 17, the rare bleeding disorders community worldwide marks World Haemophilia Day. This commemoration is an opportunity to raise awareness about the needs of those affected by rare bleeding disorders.

In 2024, the EHC focuses on Education: Scaling Up The Knowledge To Empower The Bleeding Disorders Community!

Serving its community has always been at the heart of the EHC work, and so is patient education. We aim to ensure access to education for patients and patient organisations through its diverse educational materials and programmes.

To make the experience more inclusive and user-friendly, we have created the EHC Academy, a comprehensive educational platform for our members. 

EHC Academy: Advancing Patient Education From Every Angle

Within the Academy’s virtual halls, you’ll find a wealth of knowledge on bleeding disorders, spanning from fundamental concepts to detailed information on treatment options.

Explore our EHCucate project, where we outline both established and cutting-edge treatments, and learn about the currently available treatment options (organised by cohort) as well as upcoming therapies (featured in our EHC NTR – Novel Therapies Review). In our ongoing commitment to empowerment, we’ve incorporated our online Health Economics Course, providing invaluable tools for advocacy at the national level. Furthermore, delve into the legislative landscape of the EU to understand the framework shaping our advocacy efforts.

The EHC Academy isn’t just about information—it’s a dynamic hub of resources. From surveys to care principles, handbooks to guidelines, our platform is a database of patient-centred materials. As the treatment landscape evolves and advocacy tools evolve alongside it, the EHC Academy will evolve in lockstep. Through unique, high-quality knowledge and practical tools, we aim to elevate advocacy skills and pave the way toward a better quality of life for patients across Europe. 

Our dedication to our mission remains steadfast, encapsulated in our motto: Empowering the Bleeding Disorders Community!

We urge all the EHC National Member Organisations to send us their materials in their languages to make this platform truly valuable for our big multinational family. Please contact us at [email protected] to know how you can contribute to the EHC Academy. Join us as we take a decisive step forward, together.

Discover our EHC Academy here!