On World Mental Health Day, the EHC releases the Executive Summary of its Round Table Beyond the Diagnosis: Addressing Mental Health in the Bleeding Disorders Community, emphasising the urgent need to support the psychological well-being of those affected by bleeding disorders.

Held on 23 September 2025 in Brussels, the event brought together healthcare professionals, patient advocates, clinicians, and industry representatives to address a crucial yet often overlooked aspect of comprehensive care.

The discussions revealed significant gaps between mental health policy objectives and practical implementation. MEP András Tivadar Kulja (EPP, Hungary) advocated for greater investment in psychological support, emphasising that such commitment would foster a more compassionate Europe and enhance individual well-being.

Dr Hermanas Ūsas, Psychiatrist at University Hospital Zürich, presented preliminary findings from the EHC Mental Health Survey (open for inputs in 18 languages until 9 November), highlighting the considerable mental health burden experienced by individuals with bleeding disorders and the biological and social factors that contribute to these challenges.

Amy Owen-Wyard, Registered Mental Health Nurse and mother of a child with Glanzmann’s Thrombasthenia, addressed the multifaceted stigma surrounding mental health, including public stereotypes, self-stigma, and structural barriers that prevent patients and families from accessing support. She emphasised the particular challenges faced by carers and women in the community.

Scott McLean and Vasileios Kapouranis from the EHC Mental Health Working Group shared powerful personal testimonies. Scott described how openly discussing his mental health challenges transformed his quality of life, while Vasileios emphasised that emotional well-being directly affects treatment adherence and overall health outcomes.

The speakers identified key priorities for improving mental health care access: overcoming resource constraints, promoting accessibility to specialised care, and recognising the essential role of community organisations in providing peer support.

“Mental health is healthcare,” affirmed Olivia Romero Lux, EHC CEO, as she closed the Round Table. “The bleeding disorders community needs comprehensive support that addresses both physical and psychological well-being.“

On this World Mental Health Day, the EHC reaffirms its commitment to collaborative efforts across Europe to:

• Integrate mental health specialists into comprehensive care centres
• Reduce stigma through education and open dialogue
• Strengthen peer-to-peer support networks
• Translate policy awareness into practical action

By improving access, raising awareness, and strengthening support systems, we can empower people with bleeding disorders to thrive—not just survive.