Olivia joined the EHC team in April 2024 after serving the EHC community as a volunteer for many years and in different roles: Steering Committee Member and interim President.

Focused on equal access to treatment for all, youth education, and National Member Organisation (NMO) capacity building, Olivia was elected to the EHC Steering Committee from 2013 until 2020, and has been the EHC Youth Advisor since its establishment. She was co-opted to join the EHC Steering Committee again in January 2023. In July 2023, the EHC Steering Committee unanimously appointed  Olivia to assume the role of President in an interim caretaking capacity until the end of the term in October 2023, after the resignation of Declan Noone.

With a proven track record of dedication and experience, Olivia brings a wealth of expertise and leadership to the EHC. Her commitment to the current vision and strategic objectives, as well as her innovative and balanced approach to challenges, will guide EHC through its next phase of growth and development.

Rumana Molla joined the EHC in 2021 and is currently the Finance and Administration Manager. 

She was born in the USA and brought up in Belgium. She graduated from IHECS (Brussels) in Mass Communication. She spent several years working as a Communication Officer at La Poste and subsequently at FEBE. She also spent some time in India, working in the television and film industry.

Rumana speaks English, French, Dutch, Hindi, Bengali and some Spanish.

In her role, Rumana performs day-to-day accounting tasks, payments, encoding invoices, oversees and reviews expenses and credit card reports; oversees the EHC’s administrative and financial responsibilities; presents financial and analytical reports to the CEO and Treasurer; oversees the audit; manages the administrative aspect of sponsorships; supervises and conducts yearly reviews with the Administration officer.

Daria joined the EHC in December 2021 as its Public Policy and Communications Officer, with her role gradually evolving. As of 2025, Daria is the EHC Education and Communications Manager.  

Initially, she started her career in international affairs. Daria then switched to international business and worked in various thematic areas, including media, science, technology, and youth. She has a long track record in partnership building, stakeholder and project management, and team leadership.

A native Russian, Daria holds two master’s degrees in international relations and foreign policy and economics. Daria speaks Russian, English, and French, progressing in Italian. In her free time, she plays the violin and manages an art club.

In her current capacity, Daria manages the main educational projects of the EHC: Health Economics Course, EHCucate, Living Well Ageing Well, and many more. She also oversees the EHC Academy. As Communications Manager, she is responsible for all communications work of the EHC, including management of the websites and social media of the organisation and elaboration and execution of the main PR campaigns. Daria also supervises Camilla Lombardi, EHC Communications and Project Officer.

Zita joined the EHC in 2022 as a Think Tank Officer. As of 2025, she serves as the Community and Projects Lead.

In her current role, Zita is responsible for several key areas. She oversees community-facing initiatives, including liaising with assigned National Member Organisations (NMOs), managing the #ThisWay physical activity campaign, and overseeing the Activity Grant and Physical Activity Grant programmes. She manages groups such as the Women and Bleeding Disorders (WBD) Committee, the von Willebrand Disease (VWD) Committee, and the Mental Health Working Group. Additionally, she is responsible for facilitation and content creation.

Zita has an academic background in International Relations and speaks Hungarian, English, and Dutch.

Before joining the EHC, Zita worked for various Brussels-based membership organisations, focusing on event organisation and project management. In addition to her work with the EHC, Zita brings a unique perspective as a nutritionist and health coach, integrating a holistic approach to wellbeing into her work.

Roberta joined the EHC in September 2024 as its Public Policy Lead.

Before joining the EHC, Roberta worked for various public health stakeholders, including European Respiratory Society and APCO, where she gained experience in civil society and private sector, advocacy, project management, and EU health policy.

A native Lithuanian, Roberta holds a master’s degree in international development from Sciences Po Paris and a bachelor’s degree in international politics and development from Vytautas Magnus University in Lithuania. Roberta speaks Lithuanian, English, and Italian, and has a limited proficiency in French and Russian.

Stefan joined the EHC Staff in December 2024 as Patient Engagement and Community Lead, after being involved as a volunteer in bleeding disorder patient organisations in Serbia and internationally for many years. He has severe haemophilia A, and holds a Bachelor’s degree in law.

His greatest passion is patient advocacy, and he has been especially passionate about improving youth engagement within the bleeding disorders community. Hence, Stefan was the President of the Youth Committee of the Serbian Haemophilia Society and a member of the EHC Youth Committee between 2018 and 2024.

In 2020, he was also co-opted as EHC Steering Committee Member, a role in which he served until the new elections in October 2024. Stefan strives to continue improving the lives of those affected by bleeding disorders through cooperation with the entire community.

Stefan’s main responsibilities at the EHC include overseeing the European Rare and Inhibitor Network (ERIN) and the Youth Committee, and managing key activities and events, such as the EHC Leadership Conference, Youth Leadership Workshop, Youth Alumni Event, and ERIN Summit. He is also responsible for the Youth Fellowship Programme and serves as a liaison for some selected NMOs.

Camilla joined the EHC in 2024 to work closely with Daria Camilli on communications and projects.

Growing up in Italy, she graduated from the University of Bologna with a Bachelor’s in Political, Social, and International Sciences and a Master’s in Mass Media and Politics. Between 2018 and 2021, she volunteered and worked as a freelancer in journalism in Italy before discovering European civil society organisations in Brussels. 

Camilla is passionate about writing, music and creative expression in general. Having a strong sense of social justice, she wishes her work to have a meaningful social impact. She speaks Italian, English, and French.

Stéphanie joined the EHC team in October 2024 to work closely with Rumana on administrative tasks. She has always been interested in healthcare and well-being, so the EHC is a perfect fit.

Stéphanie grew up in Brussels and has a Bachelor’s degree in social work. She previously worked in several Belgian organisations in the disability sector, in psychiatry, assistance to young people and helping homeless women in a shelter (for ten years). She volunteered at the Brugmann Hospital during the Covid19 crisis. Through her experience on the ground, she acquired excellent organisational skills and an in-depth understanding of Belgian organisations.

Stéphanie wants to make a difference on her own scale and be a part of something bigger. She is passionate about music, drawing and the arts in general. She speaks French and English and is learning Spanish.

In her current capacity, main tasks of Stéphanie include:

• Performs logistical support to organise EHC small-scale events;
• Coordinates the work with the social secretariat and manages EHC insurance;
• Handles mail and office email;
• Is responsible for office maintenance;
• Tracks and reports volunteer timesheets.

Domenico Pecoraro joined the EHC in September 2026 as a Public Policy Assistant, under the supervision of Roberta Sadauskaitė.

He holds a Bachelor’s Degree in Diplomatic, International and Global Security Studies from the University of Salerno and is currently pursuing a Master’s Degree in International Relations at the University of Naples Federico II.

Living with haemophilia, Domenico is actively involved in the Italian bleeding disorders community and serves as a young representative of the Italian haemophilia community. Through his advocacy work, he is particularly committed to ensuring that the voices and experiences of young people are meaningfully represented in discussions on haemophilia care, healthcare policy and the future of the bleeding disorders community.

His academic background, together with his personal experience of living with haemophilia, has strengthened his interest in public policy, European affairs and international cooperation. He is particularly passionate about social justice, peace and equality, as well as equitable access to healthcare. He strongly believes in the importance of meaningful patient involvement in shaping inclusive, patient-centred policies and healthcare systems.

Domenico is Italian and speaks Italian, English and Spanish, having further developed his Spanish during an Erasmus experience in Granada, Spain. He is also currently beginning to study Arabic and Chinese.

Outside his academic and advocacy activities, Domenico is a drummer and enjoys music as a space for creativity, self-expression and connection.