The Von Willebrand Disease (VWD) Committee was set up as a working group in 2020 to lead the ‘EHC VWD Platform for Europe.’ This platform promotes the formation of a European community of people with von Willebrand Disease (PwVWD) enabling them to find support and ‘identity’ while also promoting, building, and maintaining a network of European VWD advocates. The working group was transformed into a committee in 2023 which reflects its evolution and development over the past three years. The Committee aims to increase and improve diagnosis and treatment options nationally and enable those VWD advocates to work at the European level and with other European partners towards improving access to treatment and care for all PwVWD.

Discover the project ‘How Did That Happen?’ devoted to the first European VWD Awareness Day here.

The EHC VWD Committee is composed of:

Manon Degenaar-Dujardin
Dutch NMO

Sunjeev Maini

Julia Rauscher
Austrian NMO

Joanne Traunter

Baiba Ziemele
Latvian NMO

The work of the EHC VWD Committee is supported by Daria Mironova, EHC Communications and Education Lead.