This World Haemophilia Day, we’re creating a time capsule with a Letter to the Future to be opened in 2039 when the EHC celebrates its 50th anniversary. We want to hear from you.

The letter will capture where we stand as a community in 2026 and our hopes for the next 15 years. Your voice will become part of this historic document — a bridge between today and tomorrow.

Share your hopes and wisdom

Complete one sentence prompt that speaks to you:

• “Looking back, I wish I had known that…”
• “By 2039, I hope that…”
• “What matters most to me is…”
• “My promise to myself is…”
• “To the bleeding disorders community of 2039, I want to say…”
• “Living with a bleeding disorder in 2026 means…”

Your contribution can be anonymous or include your name. Every voice matters — from those just beginning their journey to those with decades of lived experience.

Deadline: 18 March 2026

In 2039, when this capsule is opened, your words will remind future generations of our struggles, our triumphs, and our hopes. Join us in creating this collective memory.

This initiative is part of our Living Well, Ageing Well project.