Haemophilia is often perceived as a condition that only affects men, and this outdated view continues to affect care, diagnosis, and understanding of the condition in women. While haemophilia primarily affects males due to its X-linked inheritance, up to 30% of female carriers have reduced clotting factor levels, and many more experience increased bleeding risks. Despite this, women are still too often seen as “just carriers”, a misconception that can delay diagnosis and limit access to appropriate healthcare.

To challenge this bias and raise awareness, the EHC is releasing two new resources on World Haemophilia Day 2025:

📘 Is haemophilia (fe)male?, a booklet created by the EHC focusing on female haemophilia carriers and women and girls with haemophilia, exploring their clinical realities, lived experiences, and the systemic gaps they face. If you are an EHC National Member Organisation and wish to translate this publication into your national language, please contact the EHC at [email protected]. 

Download the EHC Booklet HERE.

🎧A new podcast episode hosted by the European Patients’ Forum, featuring EHC CEO Olivia Romero Lux, to further highlight the importance of recognising and supporting female haemophilia carriers and women and girls with haemophilia. 

Listen to the EPF Podcast HERE.

On World Haemophilia Day, we encourage you to read, listen, and help us raise awareness. Because haemophilia doesn’t discriminate — and neither should care.

#WHD2025 #WorldHemophiliaDay #WeBleedToo #HaemophiliaAwareness