To mark the 2022 International Women’s Day, held on 8 March, the EHC Women and Bleeding Disorders Committee wishes to share a pleasant surprise!
The Committee has prepared an ’empty’ copy of its ‘diagnosis-quiz flyer (see below) so that EHC members can fill it in their local language and distribute it amongst their membership. This flyer can also be shared with clinicians and other healthcare professionals interested in women and girls with bleeding disorders. Below is the original English version and other languages in which the flyer has already been translated. EHC has also prepared a few social media cards to raise awareness about women and girls with bleeding disorders for social media use.
The EHC Committee on Women and Bleeding Disorders is confident that such a present will cheer the community and provide a tool for raising awareness about women and girls with bleeding disorders.
Let us celebrate 8 March all over Europe by having the flyers all across the platforms and let us talk about our female members, diagnosis, therapy, and so wish them well on Women’s day!
Download the Diagnosis Quiz Flyer
- Download it in English,
- Download in French,
- Download it in German,
- Download it in Danish,
- Download it Serbian,
- Download the template and its print version, personalise it to your language,
- Download the symptom icons,
- Download a Social Media ad for Facebook, and
- Download a Social Media ad for Twitter.
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
