On March 17, 2026, the EHC is organising a Round Table discussion on the topic of unmet needs in extremely rare bleeding disorders, hosted by MEP Tomislav Sokol (EPP, Croatia) at the European Parliament in Brussels.
Many people living with extremely rare bleeding disorders continue to face delayed or missed diagnoses, lack of treatment options, and limited access to care. With the European Union currently debating key issues around pharmaceutical legislation and equitable access to innovation, now is a crucial moment to address these gaps. By convening clinicians, patients, and policymakers, this Round Table would provide a unique platform to highlight solutions and ensure that no patient is left behind.
Travel Grants for EHC National Member Organisations
The EHC continues its small grant programme to help a wider group of EHC National Member Organisations (NMOs) access and benefit from the EHC Round Tables in Brussels.
The EHC will cover the travel costs up to €500 for up to 5 NMO representatives to participate in this Round Table. The EHC will approve the requests based on the following criteria:
- Whether the NMO or NMO member has a current specific and relevant interest in the topic of the Round Table;
- Whether the NMO or NMO member is currently advocating on the topic of the Round Table;
- Whether the NMO is planning a programme or project on the topic of the Round Table in the near future;
- Initially in this process, preference will be given to NMOs or NMO members who have not attended previous Round Tables.
Please note: if an NMO member confirms attendance but does not attend, the EHC won’t fund the travel grant. Hence, taking travel insurance is highly recommended.
To apply, please send an email to Roberta Sadauskaite, EHC Public Policy Lead, at [email protected].
