As part of its ongoing Living Well, Ageing Well project, the EHC is launching a series of initiatives that place the lived experience of ageing with a bleeding disorder at the centre of the conversation.

Drawing on the lived experiences of our community, on World Oral Health Day 2026 we are calling on policymakers, healthcare systems, and medical professionals to take action to ensure safe, accessible, and coordinated dental care for all.

The EHC reaffirms its commitment to advancing equitable recognition, diagnosis, and care for women and girls living with bleeding disorders across Europe.

This World Haemophilia Day, we’re creating a time capsule with a Letter to the Future to be opened in 2039 when the EHC celebrates its 50th anniversary. We want to hear from you.

The EHC is marking the occasion by renewing its call for von Willebrand Factor to be included on the European Union’s List of Critical Medicines.

This new resource provides clear, accessible information on key topics for anyone seeking to better understand VWD, including symptoms, diagnosis, testing methods, treatment options, menstrual health and more.