Welcome to the resource page for people with inhibitors. Here, you will find additional resources from the video developed by EHC for World Haemophilia Day 2022 to raise awareness about issues faced by people with inhibitors.

Christina Burgess, Member of the EHC Inhibitor Working Group.

A debilitating chronic illness can lead to isolation, and people with inhibitors experience an even further separation and lack of connection to the bleeding disorder community. How can we improve this?

  • Read and listen to the interview with the psychotherapist, Ms Nicola Dunn, on the psychosocial issues of people with inhibitors. From the EHC ‘Happy Half-Hour with an Inhibitor Expert’ from February 2019.
  • Read the article on ‘Talking to your child about emotions.’ From the EHC Inhibitor Network website.
  • Join one of the EHC Peer-to-Peer sessions for people with inhibitors and their families.
  • Read the ‘Are you in?’ handbook full of resources and ideas on how to better integrate people with inhibitors in the activities of national patient organisations.
  • Check out examples of best practices from the EHC members on how to serve people with bleeding disorders and inhibitors.
  • Try out the EHC educational app on novel therapies in haemophilia and other rare bleeding disorders, EHCucate.

Dr Beatrice Nolan, Consultant Paediatric Haematologist, EHC MASAG.

For a patient with inhibitors, deciding to undergo surgery can be very complex. When do you consider this the best option for the patient as a haematologist?

  • Watch the European Principles of Inhibitor Management. A video developed by the EHC.
  • Read the interview with a haematologist, Dr Maria Elisa Mancuso, on the possibilities of surgery for people with haemophilia and inhibitors. From the EHC ‘Happy Half-Hour with an Inhibitor Expert’ from January 2019.
  • Read an article about ‘Surgery in people with haemophilia and inhibitors’ from the EHC Inhibitor Network website.
  • Try out the EHC app on novel therapies, EHCucate.

Nathan Doyle, Patient with Haemophilia B with Inhibitors

What advice would you give to a patient with inhibitors on the importance of physiotherapy and being physically active?

  • Watch the European Principles of Inhibitor Management. A video developed by the EHC.
  • Read the interview with a physiotherapist, Mr Piet De Kleijn, on physiotherapy for people with haemophilia and inhibitors. From the EHC ‘Happy Half-Hour with an Inhibitor Expert’ from November 2018.
  • Read the interview with strength and conditioning expert Mr John Stack on fitness for people with haemophilia and inhibitors. From the EHC ‘Happy Half-Hour with an Inhibitor Expert’ from October 2019.
  • Try out the EHC app on novel therapies, EHCucate.