Welcome to the resource page for people with mild bleeding disorders. Here, you will find additional resources from the video developed by EHC for World Haemophilia Day 2022 to raise awareness about issues faced by people with mild bleeding disorders.
Diana Lighezan, Haematologist in training, member of the EHC Women and Bleeding Disorders Committee and member of the EHC Steering Committee, Romania.
People with a milder bleeding disorder often think that their bleeds are normal. Can you explain why this is a narrative that needs changing?
- Read the guide on ‘Living with Mild Haemophilia’ from the Haemophilia Foundation of Australia.
David Silva, patient with mild haemophilia A.
As a patient with a mild bleeding disorder who may attend the haemophilia treatment centre infrequently, do you have any advice on how to best navigate the healthcare system?
- Read about ‘Treatment and Care’ for people with mild bleeding disorders, a resource from the Haemophilia Foundation of Australia.
Nanda Uitslager, Nurse Practitioner, the Netherlands
What is the best approach to engaging patients with milder bleeding disorders?
- Read ‘The changing role of the specialist haemophilia nurse,’ from the Nursing Times published in August 2021.
