European Haemophilia Consortium (EHC)



CSL shares rise on hopes for new haemophilia drug in 2015

CSL shares rise on hopes for new haemophilia drug [more]


Bayer to seek approval for haemophilia drug this month

Bayer to seek approval for haemophilia drug this m[more]


Baxter Submits Application for U.S. FDA Approval of

Baxter U.S. - Baxter Submits Application for U.S. [more]


Gene therapy found effective in hemophilia B

Gene therapy found effective in hemophilia[more]


Hot Topics in Adult Immunization, 2014

Hot Topics in Adult Immunization, 2014www.medscape[more]


UK: NHS asks Nice to delay ground-breaking hepatitis C drug

HCV New Drug Research: NHS asks Nice to delay grou[more]

The European Haemophilia Consortium Welcomes You

EHC celebrates 25 years with cocktail reception

3 December 2014

Following its last Round Table of the year, the European Haemophilia Consortium (EHC) convened its members and partners to a small cocktail reception in its new Brussels offices. This was also the opportunity to present the new EHC website that will come live in January 2015.

The EHC would like to thank all of its members and partners for supporting its activities over the past 25 years.

EHC holds Round Table on National Haemophilia Councils

3 December 2014

The European Haemophilia Consortium held on 1 December its last round table of the year on 'National Haemophilia Councils: From concept to reality'. The event was hosted by Members of the European Parliament, Mrs Nessa Childers and Dr Cristian Silvu Busoi in the European Parliament in Brussels.

Over 40 participants came together to hear about the benefits of national haemophilia councils, which are formal or informal bodies involving patients' representatives, government officials, payers and clinicians to organise haemophilia care in a given country. The benfits of such bodies is patient involvement and patient-centredeness in the organisation and delivery of healthcare services.

During the event participants heard from case-studies in Ireland, the UK, Romania and Poland as well as from a representatives of the European Patient Forum on the benefits of patients involvement and empowerment.

The presentations and report of the event will be provided soon on the website.

EHC holds first New Technologies Workshop

3 December 2014

The EHC held on 19-21 November its first New Technologies Workshop. 40 participants from 17 countries came together in Dublin to learn more about novel technologies enhancing the half-life of haemophilia treatment.

Read more

EHC publishes report on round table on von Willebrand Disease and Factor

27 November 2014

The EHC has published the report of the round table on: 'von Willebrand disease and factor: Current clinical developments'.The event presented the latest findings for the treatment of von Willebrand disease as well as looking at the role of von Willebrand factor in the prevention of inhibitor formation in patients with haemophilia. Acquired von Willebrand Syndrome was also presented. 

The full report can be consulted here.

EHC publishes 2013 Annual Report

04 November 2014

The European Haemophilia Consortium (EHC) presented during its last General Assembly its 2013 Annual Report. The document can be consulted in electronic format on the EHC website. To receive a paper copy, please contact the EHC office.

(3.9 MB)

About the EHC

The EHC is an umbrella patient association of 44 national haemophilia associations in Europe. In this website you will find more about the bleeding disorders, about the mission and activities of the EHC, about its members and much more.

EHC Headquarters: rue de l'Industrie/ Nijverheidsstraat 10, 1000 Brussels, Belgium, tel: +32.(0)2.893.24.70 Write us a e-mail office-Entfernen Sie diesen