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The European Haemophilia Consortium Welcomes You

Second 2014 edition of the EHC Newsletter out now!

8 August 2014

The second edition of the 2014 EHC Newsletter has been released. You can read it electronically here (1.8 MB).

EHC releases video on European recommendations for haemophilia treatment

14 July 2014

The European Haemophilia Consortium has released a video describing the European recommendations for the treatment of haemophilia and other bleeding disorders. The recommendations are the result of a two-day scientific meeting that took place in 2013 under the auspices of the European Directorate for the Quality fo Medicines and Healthcare (EDQM), the Paul-Ehrlich Institut and the University of Munich. The video is available on the EHC YouTube Channel.

Deadline for call for posters for EHC conference extended

7 July 2014

The EHC is pleased to announce that it has extended the deadline of the call for posters for the EHC Annual Conference taking place in Belfast on 3-5 October.

Posters will have to be focused on NMO and clinical activities of interst to the European haemophilia community and should be submitted by Friday 1st August to info@conferenceorganisers.ie

The top-ranked abstracts will be selected for poster display for the duration of the conference.

Please send a one page abstract in both word (.doc) and .pdf format.

Poster Format
A poster stand of approximate size A0 will be provided for displaying posters. Posters should be presented in A0 size, portrait, i.e. 841mm x 1189 mm.

For more information, please consult the conference website.

EHC holds Youth Leadership Workshop

7 July 2014

On 4-6 July, the EHC held its first Youth Leadership Workshop in Amsterdam, the Netherlands.

The workshop brought together 15 participants from 12 countries to discuss leadership, management and communication techniques directly applicable in their volunteer work.

Read more

EHC holds round table on "von Willebrand Disease and Factor: Current Clinical Issues"

On 16 June, the European Haemophilia Consortium held a round table in Brussels on: "von Willebrand Disease and Factor: Current clinical issues". Over 40 participants, including representatives from nine National Members Organisations attended the event. Presentations and discussions were held on the current treatment options for VWD as well as the role of vWF in the prevention of inhibitor development in people with haemophilia. The agenda, participants' list, presentations and speakers biographies can be found on the round table section of the website. A full report of the event will soon be published.

EHC publishes press release on orphan medicinal products and market exclusivity

27 May 2014

The European Haemophilia Consortium has disseminated a press release (76 KB) following the editorial in "Haemophilia" published earlier this month, on novel haemophilia treatments and market exclusivity as described by the Orphan Medicinal Product Regulation.

The editorial of "Haemophilia" can be consulted freely online here.

About the EHC

The EHC is an umbrella patient association of 44 national haemophilia associations in Europe. In this website you will find more about the bleeding disorders, about the mission and activities of the EHC, about its members and much more.

EHC Headquarters: Rue du Marché aux herbes 105 B 14, 1000 Brussels, Belgium +32 2 521 11 50 Write us a e-mail office-Entfernen Sie diesen Text-@ehc.eu