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The European Haemophilia Consortium Welcomes You

Today is World Haemophilia Day

Speakers and EHC staff at the Paul Ehrlich Institut

Today, the haemophilia community around the world celebrates World Haemophilia Day, an international observance held annually on 17 April, commemorating the birth date of Frank Schnabel, the World Federation of Hemophilia's first president.

This year the European Haemophilia Consortium celebrated this commemoration a day earlier (on 16 April) with an event at the Paul Ehrlich Institut in Langen, Germany to present the Council of Europe's Directorate for Quality of Medicines and Healthcare (EDQM) recommendations setting the minimum standards of care for people with haemophilia in Europe.

The recommendations were the result of a two-day scientific meeting held in Wild Bad Kreuth in 2013 where patients' representatives, leading physicians and regulators came together to discuss the optimal use of coagulation factors.

These recommendations have been published in the scientific journal "Haemophilia".

Please join us in raising awareness for people living with haemophilia!

Save the Date: EHC Round Table on von Willebrand Disease

The EHC is delighted to welcome you to its next Round Table on: "Current issues in von Willebrand Disease", which will take place on 16 June in Brussels.


More information on this event can be found on the Round Table section.

EHC Newsletter April 2014 now online

The first 2014 edition of the EHC Newsletter is now online and can be consulted here (2.1 MB)

EHC Celebrates its 25th Anniversary

25 years to this day (April 7-9, 1989), in the wake of the contaminated blood scandals, patients' representatives from across Europe met in Noordwijk (the Netherlands) to discuss European collaboration. This is when the EHC was first created. We are proud of our accomplishments, which were made possible through the contribution of dedicated individuals that make up our membership. Come and celebrate with us this special anniversary during the EHC annual conference in Belfast!
Moreover, to commemorate this milestone, the EHC will run throughout the year a series of articles in its newsletter to look back at its experiences and to look ahead at its new priorities. Make sure not to miss them!

Report of the Round Table on Rare Bleeding Disorders and Orphan Drugs is online!

The Opens internal link in new windowreport of the last EHC Round Table on "Rare Bleeding Disorders and Orphan Drugs" is now online. The event took place on 3 March at the European Parliament in Brussels and featured a series of speakers from patients' representatives, the medical community, regulators, health insurances and payers.

EHC World Haemophilia Day Event

On 16 April, one day ahead of World Haemophilia Day, the EHC is launching the Recommendations on Haemophilia Care prepared by Council of Europe, European Directorate for Quality of Medicine and Healthcare (EDQM). The event will be held at the Paul Ehrlich Institute in Langen, near Frankfurt, Germany.

Here is the agenda (99 KB) of the event. To register, please contact the Write us a e-mail EHC office.

About the EHC

The EHC is an umbrella patient association of 44 national haemophilia associations in Europe. In this website you will find more about the bleeding disorders, about the mission and activities of the EHC, about its members and much more.

EHC Headquarters: Rue du Marché aux herbes 105 B 14, 1000 Brussels, Belgium +32 2 521 11 50 Write us a e-mail office-Entfernen Sie diesen Text-@ehc.eu