EHC review of novel treatments in haemophilia & other bleeding disorders
The purpose of this newsletter is primarily to help educate EHC National Member Organisations (NMOs) and help them to provide their members and caregivers with a general overview and understanding of the rapidly evolving landscape of medicinal product development in rare bleeding disorders.
The EHC Inhibitor Summits offer a special time and space for people with haemophilia who have inhibitors, as well as their family members and caregivers to build a community, educate and empower themselves and to improve the quality of their lives. In addition, the summit will offer a possibility to spend time in a relaxing environment and enjoy the activities together.
Although it is not often talked about, women are equally impacted by rare bleeding disorders. On 19 June the EHC held a Round Table of Stakeholders on ‘Women and Rare Bleeding Disorders’ in the European Parliament in Brussels. Find out what issues these women are confronted with and what can be done to raise awareness.
Go inside the realities of day-to-day life of people with haemophilia and inhibitors. Hear their stories and experience what different outcomes disparities in access to treatment throughout Europe lead to.
The EHC publishes a newsletter three times a year (April, August, December) with information about its activities, news from its members and other hot topics from the European bleeding disorders’ community.