ЕКГ выпускает заявление по случаем спонтанной формы болезни Крейтцфельда-Якоба в Великобритании

Несколькими днями ранее в официальном журнале Центров контроля и предотвращения заболеваний (CDC) была опубликована статья о фактах смерти двух...

БЮЛЛЕТЕНЬ ЕКГ МАЙ 2016

Бюллетень ЕКГ МАЙ 2016 Содержание: стр. 03: Обращение президента и исполнительного директора Новости ЕКГ стр. 07: Комплексное медицинское обслуживание...

ЕКГ запускает программу грантового финансирования для поддержания работы национальных членских организаций

Во время проведения Второй конференции лидеров (9–12 июня 2016 г., Брюссель), Европейский консорциум гемофилии (ЕКГ) объявил о создании фонда...

Haemophilia News

2 days ago

Roche’s emicizumab showed positive results in phase III studies (HAVEN 1 and HAVEN 2) in haemophilia A with inhibitors ... See MoreSee Less

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Haemophilia News

2 days ago

Bioverativ Announces FDA Acceptance of Investigational New Drug Application for BIVV001 to Treat Hemophilia A ... See MoreSee Less

Bioverativ - Bioverativ Announces FDA Acceptance of Investigational New Drug Application for BIVV001 to Treat Hemophilia A

bioverativ.com

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Haemophilia News

5 days ago

Blood disease that plagued Europe’s royal families might be treatable using gene editing ... See MoreSee Less

Blood disease that plagued Europe's royal families might be treatable using gene editing | Genetic Literacy Project

geneticliteracyproject.org

Researchers are hoping to use gene editing to create more effective and less expensive treatment options--compared to gene therapy--for people with hemophilia B blood disorder.

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European Haemophilia Consortium

25 minutes ago

New study published in the Journal of Musculoskeletal and Neuronal Interactions:
hemophilianewstoday.com/2017/06/23/whole-body-vibration-increases-muscle-strength-bone-mineral-de... ... See MoreSee Less

Whole Body Vibration Improves Muscle Strength, Bone Mineral Density in Children with Hemophilia, Study Shows

hemophilianewstoday.com

A new study suggests that whole body vibration increases muscle strength, bone mineral density, and functional capacity in children with hemophilia.

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European Haemophilia Consortium

1 day ago

EHC Steering Committee member and chair of today's Round Table Miguel Crato shares his personal experience with knee replacement surgery - preparation, process and outcome. "Now, I feel no pain". ... See MoreSee Less

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European Haemophilia Consortium

1 day ago

Very interesting and visual presentation from Professor Pal Andre Holme from the Oslo University Hospital on ultrasound imaging for early detection of arthropathy in haemophilia.
The future of ultrasound:
-Use of ultrasound as part of routine clinical examination by haemophilia specialists may optimize the diagnostic workflow, avoiding additional costs and long waiting lists for patients referred to imaging departments.
-Information on early joint involvement provided by ultra sound could guide the clinical management of haemophilia by influencing treatment decisions on a personalised basis.
#RT2017 #haemophilia ... See MoreSee Less

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A Look Ahead: EHC May 2017 Newsletter

In this issue — the latest developments in haemophilia care, inspiring stories of achievement, PARTNERS programme — EHC project to increase access to treatment, aspects of inhibitor management and much more!

EHC to hold Round Table on Orthopaedic Issues

The EHC will hold its second Round Table of Stakeholders on 27 June on the topic of Orthopaedic Issues in Haemophilia

See all the EHC videos on the EHC YouTube Channel

Our videos include advocacy videos but also webcast videos of presentations from our previous Annual Conferences.

Sign-up for the EHC Newsletter

The EHC publishes a newsletter three times a year (April, August, December) with information about its activities, news from its members and other hot topics from the European bleeding disorders’ community.