Have you seen the new EHC.EU? You might have noticed some changes! As part of our branding and long-term strategy planning, EHC has begun to push for standardisation of all its communications and publications. Part of this process has been a refocus and upgrade of out primary site, https://www.ehc.eu/
After a stabilisation and maintenance upgrade, ehc.eu now features:
- Easier navigation and cleaner menu bars;
- better, indexed search engine – just the magnifying glass;
- events are one-stop and easy to find – no more having to search where anything is;
- our slider has been replaced with a reactive display that can now not only host video but live broadcasting;
- our post section is now real-time and tied to our social media. Don’t have a Twitter account? No problem – our front page plays video;
- We’ve rebuilt the youth leadership section with new videos, an interactive updated NMO section, and modernised the staff section (check out our avatars)
- We’ve added a media, style and brand guide section, as well downloadable presentation templates, icons and logos
- downloadable and readable PDFs in magazine formatting
We’re not finished yet. Our site is our main calling card and we will be constantly updating and making adjustments to keep the it current and alive. What’s coming up? A sustainable and cross-indexed library built on an international system, an expanded women’s section…and lots and lots more content, videos and engaging material.
We are also well-underway to completing a rebuild of our Inhibitor and Russian sites as well. Have ideas, suggestions or comments? Contact [email protected]
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
