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Posts by category
- Category: EHC News
- EHC launches survey on women with bleeding disorders in Europe
- Call for volunteers to join the EHC Women and Bleeding Disorders Committee
- Alnylam issues report on fatal thrombotic event in study of fitusiran
- EHC Haemophilia Care in Europe : A Survey of 37 Countries Published in Haemophilia Journal
- EHC releases statement on reported cases of sporadic CJD in the UK
- EHC Marks World Haemophilia Day (Press Release)
- EHC launches PARTNERS programme to increase access to treatment
- Roche issues statement on Emicizumab clinical trial
- Three NovoEight batches recalled due to syringe concerns
- Read all about it: EHC publishes November Round Table report
- The European Haemophilia Consortium (EHC) welcomes new staff member Ms Raia Mihaylova
- EHC is looking for an independent Project Consultant
- Holiday greetings and office closure
- Haemophilia Stories website goes live
- EHC publishes 2015 Annual Report
- EHC 2016 Annual General Assembly elects new Steering Committee Members
- Letter from the Presidents: No Brexit for EAHAD and the EHC
- EHC creates NMO activity grant
- EHC publishes response to the publication of the SIPPET Study
- Registrations are now open for the EHC first Inhibitor Summit
- SIPPET study results published
- EHC looking for part-time Office Assistant
- vCJD case reported in patient with different genotype
- Presentations from the EHC 2015 Annual Conference now available
- PPTA publishes position statement on the Zika Virus and Plasma Protein Therapies
- EHC publishes Position Statementon Zika virus
- Call for participants to the EHC Youth Leadership Workshop
- End of year holiday wishes and office closure information
- EHC holds Round Table on Mild and Moderate Haemophilia
- EHC launches survey on a European Inhibitor Network
- SIPPET study conference abstract published
- EHC publishes report from June Round Table
- EHC holds Annual General Meeting
- European bleeding disorder community meets in Belgrade
- EHC is looking for volunteers to join its Youth Committee
- EHC publishes new video on CoE resolution
- EHC comments on the IQWIG rapid report on haemophilia therapies
- Registrations for Pilot Leadership Conference close on 30 June
- EHC welcomes new Inhibitor Programme Officer
- European Court of Justice rules on MSM and blood donation
- EHC publishes reports from its last two Round Tables
- Council of Europe adopts historic resolution on principles concerning haemophilia therapies
- EHC unveils findings of survey on ‘Tenders and Procurement’ during World Haemophilia Day event in Dublin
- Portuguese Association of Hemophilia denounces economic criteria in the treatment of haemophilia
- Call for posters for EHC Annual Conference 2015
- Report of the Penrose Enquiry gets published
- EHC is looking for a new colleague
- EHC hosts Round Table on factor concentrate-related inhibitor risk in haemophilia A
- Date for the EHC Round Table on Mild Haemophilia changed to 30 November
- EHC issues Position Statement on MSM and blood donation
- EHC attends EURORDIS event to commemorate Rare Disease Day
- EHC calls for candidates to its Youth Workshop
- EHC welcomes new staff member
- Additional treatments for Hepatitis C come to the EU market
- EHC celebrates 25 years with cocktail reception
- EHC holds Round Table on National Haemophilia Councils
- EHC holds first ‘New Technologies Workshop’
- Category: EHC Newsletter
- EHC Publishes September 2017 Newsletter
- EHC Publishes May 2017 Newsletter
- EHC Publishes December 2016 Newsletter
- EHC publishes September Newsletter
- EHC publishes May 2016 Newsletter
- EHC publishes December Newsletter
- EHC publishes August 2015 Newsletter
- EHC publishes April Newsletter 2015
- EHC Newsletter – December 2014
- EHC Newsletter – August 2014
- EHC Newsletter – April 2014
- Newsletter EHC
- Category: Featured News
- The European Medicines Agency (EMA) publishes conclusion on risk of inhibitor development from two classes of VIII medicines
- EHC is Looking for a Superhero
- Take Advantage of EHC Annual Conference 2017 Early Registration Fee
- EMA’s Pharmacovigilance Risk Assessment Committee (PRAC) publishes its review on risk of inhibitor development in PUPs from two classes of FVIII medicines
- Category: Uncategorized
- Protected: Update on the implementation of the clinical trial regulation
- Protected: Cross-border Healthcare
- Protected: European Reference Networks
- Protected: Early Access to Medicines
- Protected: Orphan Medicinal Products
- Protected: Institutional Updates
- Protected: Data Protection Regulation
- Protected: Personalised Medicine
- Protected: Blood Donation
- Protected: EHC attends EMA workshop on haemophilia registries
- Protected: Towards a Harmonised EU Assessment of the Added Therapeutic Value of Medicines
- Protected: Member States look into joint purchase of medicines
- Protected: Change in presidency of the European Union
- Protected: EHC requests greater transparency and accessibility to clinical trials data
- Protected: EPF and EURORDIS call on payers to support access to healthcare
- European Parliament
- World Health Organisation
- Council of Europe
- European Medicines Agency
- European Commission
- EU Legislative Procedures
- European Commission Report On The ATMP Regulation
- WHO calls for increased transparency in medical research
- Belgium and the Netherlands announce joint procurement of medicines for rare diseases
- An EU-wide overview of the market of blood, blood components and plasma derivatives
- EMA Workshop on viral safety of plasma-derived medicinal products with respect to hepatitis E
- EU ruling on blood donation and MSM
- Council of the European Union
Calendars
Events
- ISTH 2017 Congress in Berlin, Germany www.isth2017.org
- EHC Round Table of Stakeholders on 'Usage and Measurement of EHL and non-substitutional therapies'
- EHC 2017 World Haemophilia Day Celebration
- EHC Round Table of Stakeholders on Orthopaedic Aspects in Haemophilia Care
- EHC Round Table of Stakeholders on Clinical Trials
- 2017 European Inhibitor Network (EIN) Workshop
- EHC Workshop on New Technologies in Haemophilia Care
- EHC 2017 General Assembly
- EHC 2017 Conference
- EHC Workshop on Tenders and Procurement
- EHC Inhibitor Summit 2017
- EHC Youth Leadership Workshop 2017
- EHC Leadership Conference 2017
- French NMO Information day on platelet disorders
- French NMO organises information day on 'Women with bleeding disorders and family planning'
- EHC holds first Inhibitor Summit
- EHC 2016 World Haemophilia Day Celebration
- EHC held 2016 Annual Conference
- EHC 2nd Leadership Conference
- EHC 2016 Workshop on New Technologies in Haemophilia Care
- EHC 2016 Workshop on Tenders and Procurement
- EHC Round Table on Personalised Outcome Measures
- EHC Round Table on Hepatitis C
- EHC Round Table on Ageing and Haemophilia
- EHC Youth Leadership Workshop 2016
- 13th International Haemophilia Congress of Turkey
- International Basketball Camp
- New Technologies Workshop 2015
- HTA and Economics Workshop 2015
- EHC Round Table on Inhibitors
- Round Table on Mild and Moderate Haemophilia
- Round Table on Tenders and Procurement
- Youth Workshop 2015
- EHC Annual Conference 2015
- New Technologies Workshop 2014
- EHC Pilot Leadership Conference 2015
- Round Table on Factor Concentrate-Related Inhibitor Risk in Haemophilia A
- World Haemophilia Day 2015 Event
- World Haemophilia Day 2014 Event
- HTA and Economics Workshop 2014
- Youth Leadership Workshop 2014
- Round Table on National Haemophilia Councils: from concept to reality
- Round Table on von Willebrand Factor and Disease: Current Clinical issues
- Round Table on Rare Bleeding Disorders and Orphan Drugs
- EHC Conference 2014 - Belfast, Northern Ireland, UK
- EHC Conference 2013 - Bucharest, Romania
- EHC Conference 2012 - Prague, Czech Republic
Documents
- EHC Publishes Annual Report 2016
- EHC Round Table on Orthopaedic Aspects in Haemophilia Care
- Open letter to EC President Juncker
- EHC Round Table on Clinical Trials in Haemophilia
- EHC Round Table on Outcome Measures in Haemophilia
- EHC publishes 2015 Annual Report
- EHC publishes September 2016 Newsletter
- Haemophilia Stories: Documentary and Short videos
- EHC Round Table on 'HCV and Haemophilia'
- Haemophilia Care in Europe - a survey of 35 countries (2012)
- EHC Round Table on Inhibitors in Haemophilia A
- EHC publishes December 2015 Newsletter
- EHC publishes December 2015 Newsletter
- Round Table on Mild and Moderate Haemophilia
- EHC 2014 Annual Report
- EHC Round Table on Tenders and Procurement: A European Survey of 38 Countries
- EHC Position Statement on MSM and Blood Donation
- Round Table on factor concentrate-related inhibitor risk in haemophilia A
- Round Table on National Haemophilia Council
- Round Table on von Willebrand Disease and Factor: Current Clinical Issues
- Round Table on Rare Bleeding Disorders and Orphan Drugs
- Annual Report 2013
Staff
Ministries
- Policy-Making, Advocacy, Awareness
- Promote Access to Optimal Treatment and Comprehensive Care
- Support and Empower National Member Organisations
Events Categories
- Conferences
- NMO Events
- Other events relevant to the community
- Past round tables
- Round Tables
- Workshops
- World Haemophilia Day
