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Posts by category

• Category: EHC News
  • EHC releases statement on reported cases of sporadic CJD in the UK
  • EHC Marks World Haemophilia Day (Press Release)
  • EHC launches PARTNERS programme to increase access to treatment
  • Roche issues statement on Emicizumab clinical trial
  • Three NovoEight batches recalled due to syringe concerns
  • Read all about it: EHC publishes November Round Table report
  • The European Haemophilia Consortium (EHC) welcomes new staff member Ms Raia Mihaylova
  • EHC is looking for an independent Project Consultant
  • Holiday greetings and office closure
  • Haemophilia Stories website goes live
  • EHC publishes 2015 Annual Report
  • EHC 2016 Annual General Assembly elects new Steering Committee Members
  • Letter from the Presidents: No Brexit for EAHAD and the EHC
  • EHC creates NMO activity grant
  • EHC publishes response to the publication of the SIPPET Study
  • Registrations are now open for the EHC first Inhibitor Summit
  • SIPPET study results published
  • EHC looking for part-time Office Assistant
  • vCJD case reported in patient with different genotype
  • Presentations from the EHC 2015 Annual Conference now available
  • PPTA publishes position statement on the Zika Virus and Plasma Protein Therapies
  • EHC publishes Position Statementon Zika virus
  • Call for participants to the EHC Youth Leadership Workshop
  • End of year holiday wishes and office closure information
  • EHC holds Round Table on Mild and Moderate Haemophilia
  • EHC launches survey on a European Inhibitor Network
  • SIPPET study conference abstract published
  • EHC publishes report from June Round Table
  • EHC holds Annual General Meeting
  • European bleeding disorder community meets in Belgrade
  • EHC is looking for volunteers to join its Youth Committee
  • EHC publishes new video on CoE resolution
  • EHC comments on the IQWIG rapid report on haemophilia therapies
  • Registrations for Pilot Leadership Conference close on 30 June
  • EHC welcomes new Inhibitor Programme Officer
  • European Court of Justice rules on MSM and blood donation
  • EHC publishes reports from its last two Round Tables
  • Council of Europe adopts historic resolution on principles concerning haemophilia therapies
  • EHC unveils findings of survey on ‘Tenders and Procurement’ during World Haemophilia Day event in Dublin
  • Portuguese Association of Hemophilia denounces economic criteria in the treatment of haemophilia
  • Call for posters for EHC Annual Conference 2015
  • Report of the Penrose Enquiry gets published
  • EHC is looking for a new colleague
  • EHC hosts Round Table on factor concentrate-related inhibitor risk in haemophilia A
  • Date for the EHC Round Table on Mild Haemophilia changed to 30 November
  • EHC issues Position Statement on MSM and blood donation
  • EHC attends EURORDIS event to commemorate Rare Disease Day
  • EHC calls for candidates to its Youth Workshop
  • EHC welcomes new staff member
  • Additional treatments for Hepatitis C come to the EU market
  • EHC celebrates 25 years with cocktail reception
  • EHC holds Round Table on National Haemophilia Councils
  • EHC holds first ‘New Technologies Workshop’
• Category: EHC Newsletter
  • EHC Publishes May 2017 Newsletter
  • EHC Publishes December 2016 Newsletter
  • EHC publishes September Newsletter
  • EHC publishes May 2016 Newsletter
  • EHC publishes December Newsletter
  • EHC publishes August 2015 Newsletter
  • EHC publishes April Newsletter 2015
  • EHC Newsletter – December 2014
  • EHC Newsletter – August 2014
  • EHC Newsletter – April 2014
  • Newsletter EHC
• Category: Featured News
  • EMA’s Pharmacovigilance Risk Assessment Committee (PRAC) publishes its review on risk of inhibitor development in PUPs from two classes of FVIII medicines
• Category: Uncategorized
  • Protected: Update on the implementation of the clinical trial regulation
  • Protected: Cross-border Healthcare
  • Protected: European Reference Networks
  • Protected: Early Access to Medicines
  • Protected: Orphan Medicinal Products
  • Protected: Institutional Updates
  • Protected: Data Protection Regulation
  • Protected: Personalised Medicine
  • Protected: Blood Donation
  • Protected: EHC attends EMA workshop on haemophilia registries
  • Protected: Towards a Harmonised EU Assessment of the Added Therapeutic Value of Medicines
  • Protected: Member States look into joint purchase of medicines
  • Protected: Change in presidency of the European Union
  • Protected: EHC requests greater transparency and accessibility to clinical trials data
  • Protected: EPF and EURORDIS call on payers to support access to healthcare
  • European Parliament
  • World Health Organisation
  • Council of Europe
  • European Medicines Agency
  • European Commission
  • EU Legislative Procedures
  • European Commission Report On The ATMP Regulation
  • WHO calls for increased transparency in medical research
  • Belgium and the Netherlands announce joint procurement of medicines for rare diseases
  • An EU-wide overview of the market of blood, blood components and plasma derivatives
  • EMA Workshop on viral safety of plasma-derived medicinal products with respect to hepatitis E
  • EU ruling on blood donation and MSM
  • Council of the European Union

Calendars

• NMO events

Events

• ISTH 2017 Congress in Berlin, Germany www.isth2017.org
• EHC 2017 World Haemophilia Day Celebration
• EHC 2017 Leadership Conference
• EHC Round Table of Stakeholders on Orthopaedic Aspects in Haemophilia Care
• EHC Round Table of Stakeholders on 'Extended Half-life Coagulation Factors Usage and Measurements'
• EHC Round Table of Stakeholders on Clinical Trials
• EHC Workshop on Tenders and Procurement
• EHC Workshop on New Technologies in Haemophilia Care
• EHC 2017 Annual General Assembly
• EHC 2017 Annual Conference
• EHC Inhibitor Summit 2017
• EHC Youth Leadership Workshop 2017
• French NMO Information day on platelet disorders
• French NMO organises information day on 'Women with bleeding disorders and family planning'
• EHC holds first Inhibitor Summit
• EHC 2016 World Haemophilia Day Celebration
• EHC held 2016 Annual Conference
• EHC 2nd Leadership Conference
• EHC 2016 Workshop on New Technologies in Haemophilia Care
• EHC 2016 Workshop on Tenders and Procurement
• EHC Round Table on Personalised Outcome Measures
• EHC Round Table on Hepatitis C
• EHC Round Table on Ageing and Haemophilia
• EHC Youth Leadership Workshop 2016
• 13th International Haemophilia Congress of Turkey
• International Basketball Camp
• New Technologies Workshop 2015
• HTA and Economics Workshop 2015
• EHC Round Table on Inhibitors
• Round Table on Mild and Moderate Haemophilia
• Round Table on Tenders and Procurement
• Youth Workshop 2015
• EHC Annual Conference 2015
• New Technologies Workshop 2014
• EHC Pilot Leadership Conference 2015
• Round Table on Factor Concentrate-Related Inhibitor Risk in Haemophilia A
• World Haemophilia Day 2015 Event
• World Haemophilia Day 2014 Event
• HTA and Economics Workshop 2014
• Youth Leadership Workshop 2014
• Round Table on National Haemophilia Councils: from concept to reality
• Round Table on von Willebrand Factor and Disease: Current Clinical issues
• Round Table on Rare Bleeding Disorders and Orphan Drugs
• EHC Conference 2014 - Belfast, Northern Ireland, UK
• EHC Conference 2013 - Bucharest, Romania
• EHC Conference 2012 - Prague, Czech Republic

Documents

• Open letter to EC President Juncker
• EHC Round Table on Clinical Trials in Haemophilia
• EHC Round Table on Outcome Measures in Haemophilia
• EHC publishes 2015 Annual Report
• EHC publishes September 2016 Newsletter
• Haemophilia Stories: Documentary and Short videos
• EHC Round Table on 'HCV and Haemophilia'
• Haemophilia Care in Europe - a survey of 35 countries (2012)
• EHC Round Table on Inhibitors in Haemophilia A
• EHC publishes December 2015 Newsletter
• EHC publishes December 2015 Newsletter
• Round Table on Mild and Moderate Haemophilia
• EHC 2014 Annual Report
• EHC Round Table on Tenders and Procurement: A European Survey of 38 Countries
• EHC Position Statement on MSM and Blood Donation
• Round Table on factor concentrate-related inhibitor risk in haemophilia A
• Round Table on National Haemophilia Council
• Round Table on von Willebrand Disease and Factor: Current Clinical Issues
• Round Table on Rare Bleeding Disorders and Orphan Drugs
• Annual Report 2013

Staff

• Laura Savini
• Jo Eerens
• Amanda Bok

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