
The European Haemophilia Consortium has published its September 2017 Newsletter.
In this issue, you will find:
Pg. 03: President and CEO Report
Pg. 06: EHC News
Pg. 06: Comprehensive care in haemophilia: Elective Surgery for People with
Haemophilia and Inhibitors
Pg. 11: EHC Round Table on Orthopaedic Aspects in Haemophilia Care
Pg. 14: United in Diversity: EHC Leadership Conference 2017
Pg. 18: UPDATE: EHC PARTNERS Programme on Increasing Access to Treatment
Pg. 21: UPDATE: The EHC Women’s Working Group
Pg. 23: EHC Online Platform for People with Haemophilia and Inhibitors
Pg. 25: NMO News
Pg. 25: NVHP: Support System of the Dutch Haemophilia Society
Pg. 27: Amendment of German HIV-Foundation-Law for Victims of the Blood Scandal
Finally Achieved
Pg. 29: EHC Activity Grant
Pg. 33: Marking of World Hepatitis Day in Azerbaijan
Pg. 34: The Azerbaijan Association of Patients with Haemophilia Celebrates 20 Years
Pg. 36: Mr Josko and Acquired Haemophilia
Pg. 39: Tracing the Treasure Chest – The Haemophilia Camp of Turkey
Pg. 40: The New Danish Times
Pg. 43: Feature Articles
Pg. 43: Researcher Spotlight: Dr Roberta Palla
Pg. 47: EURORDIS: Defining the Future of Rare Diseases
Pg. 51: Life Journey: The Good, The Bad, The Ugly and The Beautiful
Pg. 53: EHC Calendar of Events
Pg. 54: Announcements