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EHC Newsletter

Home > Archive for EHC Newsletter

EHC Women and Rare Bleeding Disorders Committee – part I

Meet some of the inspiring members (Yannick, Evelyn, Marion and Rose) of the EHC Women and Bleeding Disorders Committee and hear what key challenges they plan to address! In part II, we introduce you...

Read more March 16, 2018 at 12:18 pm EHC

EHC publishes December 2017 Newsletter

The EHC December 2017 Newsletter is now out and can be accessed through the link below. This will be the last issue in its current form – from 2018, we welcome a more dynamic,...

Read more January 25, 2018 at 4:02 pm EHC

EHC Publishes September 2017 Newsletter

The European Haemophilia Consortium has published its September 2017 Newsletter. In this issue, you will find: Pg. 03: President and CEO Report Pg. 06: EHC News Pg. 06: Comprehensive care in haemophilia: Elective Surgery...

Read more September 13, 2017 at 3:56 pm EHC

EHC Publishes May 2017 Newsletter

The European Haemophilia Consortium has published its May 2017 Newsletter. In this issue: Pg 03: President and CEO Report Pg 05: EHC News Pg 05: Comprehensive Care in Haemophilia: Inhibitor management Pg 08: EHC Round Table...

EHC Publishes December 2016 Newsletter

The European Haemophilia Consortium (EHC) has published its December 2016 Newsletter. In this issue: Pg 02: President and CEO Report EHC News Pg 05: Comprehensive care in haemophilia: Hepatology Pg 08: EHC Annual Conference...

Read more December 21, 2016 at 4:26 pm EHC

EHC publishes September Newsletter

The European Haemophilia Consortium (EHC) has published its September 2016 Newsletter. In this issue: Pg 02: President and CEO Report EHC News Pg 05: Comprehensive care in haemophilia: Orthopaedics Pg 07: HCV and haemophilia...

Read more September 30, 2016 at 9:32 am EHC

EHC publishes May 2016 Newsletter

The European Haemophilia Consortium (EHC) has released its May 2016 Newsletter. In this issue: Pg 03: President and CEO report EHC News Pg 06: Comprehensive care in haemophilia: Diagnostic and reference laboratory services Pg...

EHC publishes December Newsletter

The European Haemophilia Consortium (EHC) has released its December 2015 Newsletter. In this issue: Pg 04: President and CEO Report Pg 06: EHC News Pg 06: Physiotherapy in the comprehensive care of haemophilia Pg...

Read more December 21, 2015 at 7:28 pm EHC

EHC publishes August 2015 Newsletter

The August Newsletter of the EHC Newsletter is now available! In this issue: President and CEO Report Pg 03 – President and CEO Report EHC News Pg 06 – Comprehensive Care in Haemophilia: Psychosocial...

Read more September 4, 2015 at 4:00 pm EHC

EHC publishes April Newsletter 2015

EHC Newsletter – April 2015 In this issue: President and CEO Report pg 03 – President and CEO Report EHC News pg 6 – Comprehensive care for bleeding disorders: An overview of comprehensive care...

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The European Haemophilia Consortium (EHC) is a non-profit, non-government organisation that works to improve the quality of life for people with congenital bleeding disorders such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders in Europe.

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Phone: tel.: +32 (0)2 893 24 70
E-mail: office[at]ehc.eu
Website: www.ehc.eu

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Paul Rübig

Paul Rübig (born 6 May 1953) is an Austrian politician and Member of the European Parliament (MEP) from Austria. He is a member of the Austrian People's Party, part of the European People's Party.
In 1991, Rübig was selected as a candidate for the Austrian People's Party for the regional elections in Upper Austria. After having been elected, he instantly became Chairman of the then so-called EU Integration Committee. By facilitating the accession of Austria to the European Union in this period, he quickly gained significant expertise in EU related matters. After a very short period as MP, he became a Member of the European Parliament on 25 January 1996, at this time by decision of the Austrian Parliament. Since then, he was four times re-elected, namely in 1996, 1999, 2004 and 2009.

Norica Nicolai

Norica Nicolai is the vice-chair of the ALDE Group in the European Parliament and one of the
strongest liberal voices in Romania. She has been a member of the European Parliament since
2009 and has been active in, amongst others, the Foreign Affairs Committee, the Committee
for Security and Defense, Women’s Rights and Gender Equality Committee. This allowed her
to familiarise herself, not only with different political conflicts and situations, but also with
their impacts on people’s life. In addition, at the start of her second mandate in 2014, she
became a member of the Fisheries Committee in the European Parliament. She also decided
to use her notoriety and energy to get involved in social causes, such as access to treatment
and information for people with rare diseases; she became a promoter of more campaigns
regarding the problems of infertility among European citizens and has been lobbying for their
rights.
Mrs Nicolai started her political career as deputy-minister in the Ministry of Labour in
Romania back in 1995 and she was in charge of, among other things, the domain of gender
equality. In addition, from this position, she actively implemented the acquis communautaire
in Romania, creating and implementing many laws regarding issues of women’s rights.
She was also a member of the Romanian Senate from 2000 to 2008 where she was part of
the Judicial Committee and the Defense Committee, and held the position of Vice-president
of the Senate for the duration of one year.
Lastly, Mrs. Nicolai holds a degree from the School of Law of the University in Bucharest.

Dr. Miroslav Mikolášik

Dr Miroslav Mikolášik is Member of the European Parliament since 2004. He is Member of the
Committee on the Environment, Public Health and Food Safety. He is a very strong supporter of the European Haemophilia Consortium, participating in
several EHC Round Tables in the past (e.g. Round Table on Rare Bleeding Disorders and
Orphan Drugs, 2014; World Haemophilia Day, 2016). Dr. Mikolášik’s work in the European
Parliament revolves around access to life-saving medicines in Europe and paediatric
medicines.

Nessa Childers

Nessa Childers was elected to represent the Blackrock area on Dún Laoghaire /
Rathdown County Council as a Green party councilor in 2004 and during that time,
served as part of the Dublin Regional Authority. She resigned her council seat in
August 2008 and joined the Labour Party.
In the following year, she was elected as a Member of the European Parliament for the
Ireland East Constituency. She resigned from the party in July 2013. In May 2014
Nessa Childers was re-elected as an independent MEP and joined the Group of the Progressive Alliance of Socialists and Democrats as a non-
party member.

Dr. Cristian-Silviu Bușoi

Dr. Cristian-Silviu Bușoi is a Romanian physician and Member of the European Parliament.
He is a member of the European People’s Party and is currently a member of the Committee
on Environment, Public Health & Food Safety Committee (ENVI). He was a member of
the Romanian Chamber of Deputies for Timiş County from 2004 - 2007, he was a Member of
the European Parliament from 2007 - 2013, and he re-joined the European Parliament in
2014.

Highly involved in health care topics, Dr. Buşoi has been a strong supporter of the European
Haemophilia Consortium, co-chairing the Mild and Moderate Haemophilia Round Table in
2015. He is also the co-chair of the informal interest
group in the European Parliament on Patient Access to Healthcare and the Friends of the
Liver Group.

Heinz K. Becker, MEP

Heinz K. Becker has been a member of the European Parliament since 2011 in representation of the Austrian party Österreichische Volkspartei. He is member of the “Civil liberties, justice and home affairs” committee, the “Petitions” committee, as well as vice member of the “Employment and social affairs” committee. In addition, he is co-chair of the Parliamentary 'Intergroup on Ageing and Intergenerational Solidarity' and Vice President of the Parliamentary 'Interest Group on Carers.'
He is also Vice President of the European Seniors’ Union (ESU), member of the disability intergroup of the European Parliament and member of the European Alzheimer's Alliance.
Before becoming an MEP, Heinz K. Becker worked for various international advertising agencies.

Communications Officer

Raia Mihaylova joined the EHC team in January of 2017. She holds the position of Communications Officer and helps manage the organizations’ ongoing growth of activities and reach.

Previously, Raia has worked as a journalist for the Bulgarian National Darik Radio, as well as various other American and European publications. It is her passion for helping and strengthening communities that brought her to the EHC.

Raia was born in Bulgaria but grew up in the United States, speaking both languages fluently. She holds a Masters’ degree in Financial Journalism from City University of London, United Kingdom. Her Bachelor degree is in Journalism and Mass Communications, which was completed at the American University in Bulgaria.

Saskia Pfeyffer joined the EHC in 2016 as the Office Assistant and deals with administrative and accounting tasks as well as supporting the smooth running of the office and its activities.

Prior to this, Saskia has worked for more than ten years in the field of women’s health and rights. She worked for the European Parliamentary Forum on Population and Development (EPF) and for Care international.

Saskia is Dutch and speaks English, French and Dutch and has a bachelor degree in European studies from the University of The Hague, the Netherlands.