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EHC Newsletter

Home > Archive for EHC Newsletter

EHC Publishes May 2017 Newsletter

The European Haemophilia Consortium has published its May 2017 Newsletter. In this issue: Pg 03: President and CEO Report Pg 05: EHC News Pg 05: Comprehensive Care in Haemophilia: Inhibitor management Pg 08: EHC Round Table...

Read more May 5, 2017 at 2:47 pm EHC

EHC Publishes December 2016 Newsletter

The European Haemophilia Consortium (EHC) has published its December 2016 Newsletter. In this issue: Pg 02: President and CEO Report EHC News Pg 05: Comprehensive care in haemophilia: Hepatology Pg 08: EHC Annual Conference...

Read more December 21, 2016 at 4:26 pm EHC

EHC publishes September Newsletter

The European Haemophilia Consortium (EHC) has published its September 2016 Newsletter. In this issue: Pg 02: President and CEO Report EHC News Pg 05: Comprehensive care in haemophilia: Orthopaedics Pg 07: HCV and haemophilia...

Read more September 30, 2016 at 9:32 am EHC

EHC publishes May 2016 Newsletter

The European Haemophilia Consortium (EHC) has released its May 2016 Newsletter. In this issue: Pg 03: President and CEO report EHC News Pg 06: Comprehensive care in haemophilia: Diagnostic and reference laboratory services Pg...

Read more May 27, 2016 at 10:19 am EHC

EHC publishes December Newsletter

The European Haemophilia Consortium (EHC) has released its December 2015 Newsletter. In this issue: Pg 04: President and CEO Report   Pg 06: EHC News Pg 06: Physiotherapy in the comprehensive care of haemophilia Pg...

Read more December 21, 2015 at 7:28 pm EHC

EHC publishes August 2015 Newsletter

The August Newsletter of the EHC Newsletter is now available! In this issue: President and CEO Report Pg 03 – President and CEO Report EHC News Pg 06 – Comprehensive Care in Haemophilia: Psychosocial...

Read more September 4, 2015 at 4:00 pm EHC

EHC publishes April Newsletter 2015

EHC Newsletter – April 2015 In this issue: President and CEO Report pg 03 – President and CEO Report EHC News pg 6 – Comprehensive care for bleeding disorders: An overview of comprehensive care...

Read more April 28, 2015 at 7:01 pm EHC

EHC Newsletter – December 2014

EHC Newsletter – December 2014 In this issue: Message from the President and the CEO pg 02 – Joint Message from the President and the CEO EHC News pg 06 – EHC 2014 Conference...

Read more January 5, 2015 at 10:08 am EHC

EHC Newsletter – August 2014

EHC Newsletter – August 2014 President and CEO Report pg 02 – President and CEO Report EHC News pg 06 – 25 Years of the EHC: A perspective from physicians pg 12 – Official...

Read more November 29, 2014 at 11:46 pm EHC

EHC Newsletter – April 2014

EHC Newsletter April 2014 In this edition: Message from the President and the CEO pg 02 – Joint Message from the President and the CEO EHC News pg 06 – EMA Human Scientific Committees’ Working...

Read more November 29, 2014 at 11:41 pm EHC
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Haemophilia News

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Roche’s emicizumab showed positive results in phase III studies (HAVEN 1 and HAVEN 2) in haemophilia A with inhibitors ... See MoreSee Less

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Bioverativ Announces FDA Acceptance of Investigational New Drug Application for BIVV001 to Treat Hemophilia A ... See MoreSee Less

Bioverativ - Bioverativ Announces FDA Acceptance of Investigational New Drug Application for BIVV001 to Treat Hemophilia A

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Haemophilia News

5 days ago

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Blood disease that plagued Europe’s royal families might be treatable using gene editing ... See MoreSee Less

Blood disease that plagued Europe's royal families might be treatable using gene editing | Genetic Literacy Project

geneticliteracyproject.org

Researchers are hoping to use gene editing to create more effective and less expensive treatment options--compared to gene therapy--for people with hemophilia B blood disorder.

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The European Haemophilia Consortium (EHC) is a non-profit, non-government organisation that works to improve the quality of life for people with congenital bleeding disorders such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders in Europe.

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Communications Officer
Raia Mihaylova joined the EHC team in January of 2017. She holds the position of Communications Officer and helps manage the organizations’ ongoing growth of activities and reach.

Previously, Raia has worked as a journalist for the Bulgarian National Darik Radio, as well as various other American and European publications. It is her passion for helping and strengthening communities that brought her to the EHC.

Raia was born in Bulgaria but grew up in the United States, speaking both languages fluently. She holds a Masters’ degree in Financial Journalism from City University of London, United Kingdom. Her Bachelor degree is in Journalism and Mass Communications, which was completed at the American University in Bulgaria.
saskiaSaskia Pfeyffer joined the EHC in 2016 as the Office Assistant and deals with administrative and accounting tasks as well as supporting the smooth running of the office and its activities.

Prior to this, Saskia has worked for more than ten years in the field of women’s health and rights. She worked for the European Parliamentary Forum on Population and Development (EPF) and for Care international.

Saskia is Dutch and speaks English, French and Dutch and has a bachelor degree in European studies from the University of The Hague, the Netherlands.