EHC Newsletter – December 2014
In this issue:
Message from the President and the CEO
pg 02 – Joint Message from the President and the CEO
EHC News
pg 06 – EHC 2014 Conference in Belfast, Northern Ireland, UK
pg 07 – Invitation to join the 2015 EHC Conference in Belgrade
pg 08 – 25 Years of EHC: An interview with the next generation
pg 12 – Report on the EHC Workshop on Economics and Health Technology Assessments
pg 14 – Report on the EHC New Technologies Workshop
pg 18 – EHC Round Table on National Haemophilia Councils: From concept to reality
NMO News
pg 22 – EHC welcomes 45th member: Kyrgyz Haemophilia Association
pg 23 – Greek Haemophilia Society elects new President
pg 24 – The reality for haemophilia patients in Cyprus and the role of the Pancyprian NMO
pg 25 – Conference for the future of Hungarian haemophilia care
pg 28 – Nordic Meeting in Copenhagen
pg 30 – One year on barricades for improvement of haemophilia care in Romania
pg 32 – International children’s summer camp “Barsukas” Lithuania celebrates its 5th anniversary
pg 34 – Recent Publications of the Polish Haemophilia Society
Feature Articles
pg 37 – Report on the conference: ‘HTA 2.0 – teaming up for value’
pg 40 – Ensuring efficiency in haemophilia factor concentrates: “First, do no harm”
pg 43 – ELPA ‘HCV and Your Body’ International Training Day
News from the Corporate Partners
pg 44 – Advancing to a new era of personalised care
pg 45 – CSL Behring continues to advance new approaches to coagulation therapy
pg 46 – Pfizer launches Miles for Haemophilia in Barcelona and Belfast
pg 48 – European Haemophilia Recommendations: A debate with a new generation, a report from the event
pg 50 – Bayer: Building the Future on a Solid Foundation of Investement in Europe
pg 51 – Novo Nordisk is committed to Changing Possibilities in Haemophilia
Announcements
pg 52 – EHC 2015 Calendar of Events
pg 52 – Other Events
pg 54 – Social Media and the EHC